European Register on Cushing’s Syndrome
In 2006, a number of leading European endocrinologists teamed together to apply to the European Union (EU) call under the Public Health Program and succeeded in getting funding for 3 years (2007-2010), to set up a European Registry on Cushing’s Syndrome (the acronym of which is ERCUSYN). More than a decade after its start, the project is active and has recruited information from over 1600 patients.
Important Links
- European Society of Endocrinology
- Information on rare diseases
- World pituitary society
- Adrenals.eu (Information about adrenal gland disorders)
- Projects creating networks of action for rare diseases
- German Germany – Society of Endocrinology
- UK – The Pituitary Foundation
- Hungary – Hungarian Society of Endocrinology and Metabolism
- Spain – Sociedad Española de Endocrinología y Nutrición
- Spain – Societat Catalana d’Endocrinologia i Nutrició
- Spain – FEDER